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Thread: Leukemia sucks

  1. #1
    Join Date
    Feb 2007
    Location
    Washington, DC area

    Leukemia sucks

    A close friend of mine has leukemia and will need a blood stem cell donation to survive. Right now, she's in chemo and they're about to start a search for a match. She's scared. I am, too.

    I'm too old to register, though - they only want donors 40 and under. But if you're able, can you add yourself to the registry? All it takes is a cheek swab. If you ever match, you can decide then whether to donate or not.

    Please sign up to be a donor. Or encourage your younger friends to sign up. Show the world what you're made of! (Or at least show the registry.)

    https://bethematch.org/support-the-c...e-bone-marrow/

    https://bethematch.org/transplant-ba...s-are-matched/

    https://my.bethematch.org/s/join

    It may not be my friend's life you save, but you can save someone's friend.

    thanks,

    -jk

  2. #2
    Join Date
    Sep 2007
    Location
    Undisclosed
    Very sorry to hear, -jk. Prayers for all.

  3. #3
    This is terrible.

  4. #4
    Join Date
    Feb 2007
    Location
    Washington, DC area
    Thanks. It really is terrible. We first met when her then 3 1/2 year old entered our son’s coop preschool. The kids have been best friends ever since. We have, too.

    Her son was adopted from Ukraine. It was the cutest thing - pushing him on the swing while he demanded “Push high as sky! High as sky!” in his very limited English. He’s a frosh this year, and couldn’t spend any meaningful time at home over winter break due to her immune system being crap.

    -jk

  5. #5
    Join Date
    Nov 2007
    Location
    Manhattan
    So sorry to hear this, John. Just signed up for the donor registry.

  6. #6
    Join Date
    Feb 2007
    Location
    Washington, DC area
    Quote Originally Posted by Native View Post
    So sorry to hear this, John. Just signed up for the donor registry.
    Thanks! I truly appreciate it.

    -jk

  7. #7
    I almost matched with someone a few years ago(Be The Match sent a note) after being on the list for nearly two decades. I was nervous and excited at the potential opportunity but in the end they went another route for treatment.

  8. #8
    Join Date
    Nov 2007
    Location
    Vermont
    there are a lot of good developments on the leukemia front...I keep track because I've had a non-nasty version (so far) for the last 15 years. The only advice I can give anyone who is diagnosed is get to a major, experienced teaching hospital, or cancer specialty hospital...they have access to a lot more new drugs and a lot more experience dealing with the many varieties...(I opt for Dana Farber in Boston, quite the place).

  9. #9
    Very sorry to hear the terrible news!

    I’m a stockholder in a company which has invested substantial money in CAR T-cell trial drugs. It might be an answer to certain types of leukemia.

    https://apple.news/AswynlzrtQtiSzTcCXxJnSQ

  10. #10
    Quote Originally Posted by Jeffrey View Post
    Very sorry to hear the terrible news!

    I’m a stockholder in a company which has invested substantial money in CAR T-cell trial drugs. It might be an answer to certain types of leukemia.

    https://apple.news/AswynlzrtQtiSzTcCXxJnSQ
    Not sure if this is the drug you mean but potentially a hopeful breakthrough:

    https://www.the-sun.com/health/46004...-immune-cells/

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